The reason why we do research is so that we can enhance patient outcome and experience. The following sections maybe of interest to you as they provide local examples of this, they enable you to find out which studies are taking place, let you know how you can donate to support local research and also how you can find out more about the experience of those in research and how research evidence national.
Public and patient engagement events
The Trust’s research strategy is to enhance patient experience and outcome through research and innovation. Public and patient engagement is a key element of this. This is why we held two public and patient engagement events in September 2016 to explain our research priorities, to discuss these with members of the public and to identify future ways of engagement. A report covering this is available here and you can also view an introductory presentation by clicking here.
The Trust and the University of Hertfordshire held a public and patient engagement event in November 2016 to explore the potential benefits that might arise for patients if the Trust entered into a formal partnership with the University and gained “university status”. The event was well attended and the main findings were:
- The public recognised that working in partnership with the University of Hertfordshire and the gaining of university status, could deliver improved patient care.
- Public and patient engagement and involvement is an important aspect to improving patient care.
- NHS workforce development is fundamental as an enabler of better patient care.
- Robust planning to address the future needs of patients is required as well as sound day to day leadership and management Trust staff.
Research Participant survey 2016/17
It is important to us at the Trust that we seek and act on feedback from patients who choose to participate in research. Between November and December 2016 a survey was completed at both the Lister Hospital and the Mount Vernon Cancer Centre. A total of 100 patients gave us their views. We are grateful to all research participants and especially to all those who completed the survey.
You can access the full report here and a summary is provided below:
- All research participants said they strongly agreed or agreed with “I fully understood what I was consenting to”.
- 67% said they strongly agreed or agreed with “I know how to find out the results of the study I took part in”.
- 91% said yes to “Would you recommend taking part in research to other people” and only one said no.
- When asked “Overall, how would you rate your experience of taking part in research on a scale of 1 to 10 – with 1 being very poor and 10 excellent?” 69 responded with a score of 10 as excellent, 29 responded with a score of 9 and the remainder responded with 7 or more.
We received 57 comments. Of these 52 were positive, four related to problems with parking and one related to chemotherapy. Some of the comments are given below.
- “I am happy to take part in the research so that the study can help future treatments. I am completely satisfied with the care and support provided to me by the staff.”
- “Good relationship – interpersonal skills of research nurse excellent, and included a home visit to provide a replacement monitor on a Saturday (my need as research participant!).”
- “The nurses were absolutely lovely, they listened and explained everything to me and also gave very good advice on caring for myself.”
- “Research staff would answer questions, often finding out the answers and getting straight back to me. This was very important to me to know what is going on.”
- “My research nurse has always been supportive, kind and caring and has always listened to my thoughts, doubts and concerns and has always put my mind at ease. She makes my two week treatments bearable.”
- “All staff have been very supportive and proactive in making sure blood/ketone readings when high are dealt with and to check on general health.”
- “The nurses have been fantastic, the care they show to me knows no bounds. They are angels!”
- “I am so blessed to have been included on the trial. It has ensured that I was able to see my grandchildren.”
Research Participant feedback
As part of a national exercise the Trust completed a survey to find out what patients thought of their experience as research participants. This was a limited sample of 6 patients relating to Renal research at Lister Hospital. The results indicate that care is being taken to ensure that patients understand what the research is about and that they can make an informed decision whether to participate or not. Perhaps the most important finding was that all research participants said that they would recommend taking part in a research study to other eligible people.
Comments from the research participant survey when asked about research participation:
“To help others…Wanting to help…Will help in discovering treatment… A chance to recover kidney function and treat myeloma at same time… I would like to help and contribute to improve health… It will help in finding treatment to many diseases… It helps other people… friendly staff”.
Inspirational stories about clinical research
You may be interested to hear real-life stories about clinical research from the perspective of patients, carers and members of the public. Click here to listen to or watch their stories.
Finding out how research affects patient care
If you would like to look at examples of how research evidence can be used to influence national patient care then click here.
You may also want to look at the National Institute for Health and Care Clinical Excellence (NICE) website for further information on research evidence and the use of research evidence to determine availability of treatments. Click here for more details on NICE guidance.
How research has enhanced patient outcome and experience
The following are examples of how research has improved patient outcome and experience at East and North Hertfordshire NHS Trust,
- The Renal Team is very research active and run many studies. These have informed the way patients are treated. For example research has resulted in the development of Shared Care space in haemodialysis. Some patients were trained to set up their own dialysis machines in the renal unit, self-needle, put themselves on the machine and take themselves off.
- The Radiotherapy Team, with support from the Bioengineering, have developed a ‘fixation template device’ for the delivery of high dose radiation (brachytherapy) in prostate cancer treatment.
- Patients who have Robot Assisted Radical Prostatectomy were found to have better treatment when compared with patients undergoing Open Radical Prostatectomy and that the cost of treatment was less.
How you can be involved in research at the Trust
If you would like to be involved with research you can find out more via the Clinical Trials Gateway or by speaking with hospital staff.
For studies involving cancer you may also find it useful to visit the Cancer Research UK website. This also provides general information on research and what it means for you.
How you can support research at the Trust
East & North Hertfordshire Hospitals’ Charity aims to make a real, positive impact to patient care. We help our hospitals innovate, improve and provide excellent care.
The charity supports patients, staff and visitors to our four hospitals – Hertford County, Lister, QEII and Mount Vernon Cancer Centre. We purchase equipment, fund medical research and undertake refurbishment projects that are in addition to the standard work of the NHS.
We rely on voluntary donations – from individuals and organisations – to fund our work. If you would like more information about the charity, have an idea for a fundraising activity or event, or would simply like some fundraising inspiration, contact a member of the charity team today or visit our website.